AGES ASM/ISGE 15 Establishment of an Endometriosis Support Group (#C8)
Endometriosis occurs in 10 percent of Australian women. These women may experience poor quality of life, menstrual dysfunction, ongoing pain and decreased fertility. Women describe psychological distress related to pain, body image, sexuality, relationships, health costs and employment issues. In response to requests from patients, a support group was established at Epworth Freemasons Hospital in 2011. The group meets bi-monthly, is open to all women in Victoria, in a supported environment with access to expert speakers. Participants share experiences with emphasis placed on the positive aspects of supporting each other and accessing resources to assist in coping strategies aimed at improving quality of life. Surveys are conducted yearly to assess efficacy in achieving our aims. Responses have been overwhelmingly positive, providing evidence that the establishment of an Endometriosis support group enhances the quality of life of these women. This presentation provides information about a valuable support group for all Victorian women. It is important that health professionals are educated about Endometriosis to enable early detection, treatment and support for women who experience this challenging disease.
- 1. RANZCOG, Understanding Endometriosis 2. Dr Susan Evans et al., "6 Billion woman and the $600 Million Girl" endorsed by Pain Australia and Faculty of Pain Medicine ANZCA, p. 12, 2011, kind permission of Dr Susan Evans 3. AGES Scientific Meeting, Brisbane, 2013